very special day in the history of the American Hemochromatosis
March 31, 1998 to March 31, 2014 by Sandra Thomas
Serving the public for 16 years....
Before you read anything else on this website...
Here's Bottom Line Information to save you time and money:
Want answers now? Tired of wondering if you or a loved one has hereditary hemochromatosis?
Find answers quickly and privately through these "direct access" companies:
DNA genetic testing/Home test kits/Painless:
Best bargain: www.23andme.com ($99/tests three HH mutations using saliva sample)
Reports raw data with no interpretation of results/Tests for three mutations.
Gene Track (www.hemochromatosisdna.com) $195.00 + 20% discount=$156.00.
Toll free number: 1-877-714-6356 (Request discount) Painless cheek brush kit
are sent by snail mail/email in 3 to 5 days/Tests for
Iron storage levels (serum iron, TIBC, & serum ferritin):
(Used for diagnosis of hemochromatosis or monitoring the diagnosed patient)
HealthCheckUSA (www.healthcheckusa.com) Toll free number: 1-800-929-2044.
doctor's order needed/ you use a local lab /needle draw
note that HealthCheckUSA no longer offers the HFE mutation
DNA test kit
If you are searching for a diagnosis (or to rule out hemochromatosis), these tests will
help you get the answers you need. AHS would be pleased to discuss your results with you.
(AHS does not receive any funding from these companies for referring patients to them).
Please note that these labs are not a substitute for professional medical care but can provide a quick, confidential, and accurate assessment of your iron storage levels and
DNA genetic status which you can share with your doctor.
If you have any questions about these labs please call AHS at: 407-829-4488.
It all started 16 years ago...
Josephine Bogie Thomas
She was the inspiration for founding the
American Hemochromatosis Society
Sandra Thomas, Founder/President
16th Anniversary of Service to the Public!!
31, 1998 to March 31, 2014
(See the President's Message at the bottom
of the page for a history of AHS)
you for putting your trust in the American
Hemochromatosis Society (AHS)
us (and "Like" us) on Facebook!
the 1,300+ visitors to our page on Facebook!
AHS New Address!!:
(In the "old days" (circa 1998), the American Hemochromatosis Society (AHS) received and sent out a lot of mail. Now, with the Internet and Facebook, we get few requests for information by mail, and we rarely use the postal service. Nevertheless, we do have an address, and that address has now been changed to:
American Hemochromatosis Society (AHS)
P.O. Box 950871
Lake Mary, Florida 32795-0871
Most communcation with our society is through email, (email@example.com), or facebook (www.facebook.com/HereditaryHemochromatosis), or telephone, 407-829-4488.
We're here to help in any way we can.
Take a trip down memory lane... Old AHS Archives!!
In Loving Memory...
The American Hemochromatosis Society extends its sincere sympathy
the family, friends, and co-workers of
Terrance P. Lyons,
74 - May 18, 1939 to February 22, 2014
Patrick Lyons, 74, of Whitney, TX, originally of North
Platte, passed away Saturday, Feb. 22, 2014, at Town Hall
Estates. Memorial services took place at 2 p.m.
on Friday, Feb. 28, at Marshall and Marshall Funeral Directors
Chapel at Whitney with the Rev. Ouseph Thekkumthala of
Our Lady of Mercy Catholic Church officiating. Committal
services with military honors were conducted at a later
date at Dallas-Fort Worth National Cemetery.
Lyons was born May 18, 1939, at North Platte, to Michael
Joseph and Verda (Adney) Lyons. Following his high school
career, he served 10½ years with the U.S. Navy.
On March 5, 1964, he was united in marriage to Sandra
Greene at Omaha. The couple were married for 51 years.
Lyons and his wife resided the past 11 years in the Clifton/Whitney
area after moving from Leander where they owned Lyons
Quarter Horses. He was a member of the U.S. Coast Guard
Auxiliary for five years.
Survivors include: his wife, Sandy Lyons of Whitney; a
son, Jim Lyons of Fort Worth, TX; daughters, ”Brenda Lyons
of Fort Worth and Debbie McKee of San Morcos; a brother,
Tom Lyons of Clinton, IA; his sister, Marg Dillon of Gothenburg;
grandsons, Eric McKee of San Marcos, Kevin (Sarah) Lyons
of Fort Worth; great-grandsons, Ben and Will Lyons.
(See the full
obituaries in the Memorial Photo Gallery)
AHS Remembers Hemochromatosis Pioneer, Dr. Jerome Sullivan:
Dr. Jerome L. Sullivan III: Pathologist conceived of 'iron hypothesis'
May 6, 2013
By Jason Garcia, Orlando Sentinel
Dr. Jerome L. Sullivan III, the pathologist who first theorized of a link between heart disease and iron levels in the blood, died Friday of complications from diabetes. He was 68.
Sullivan, a physician, scientist and professor, was recognized around the world as the father of the "iron hypothesis," which states that people with elevated levels of iron in their blood face a greater risk of heart attacks.
Sullivan, of Winter Park, had conceived of the theory as a junior faculty member at the University of South Florida in Tampa. He was puzzled, as he would later tell People magazine, by "why young women don't have heart attacks." While the risk of heart disease began to rise in men as early as their 30s, women did not show a similar increase until much later — after they had reached menopause.
"He was thinking about it when I first met him in 1979," said Winter Park pathologist Dr. Laura Geisel Sullivan, Jerome Sullivan's wife of nearly 32 years. "One of the first questions he asked me was, 'Why are young women protected against heart disease?'"
The most common guess at the time involved estrogen levels. But the young doctor in Tampa theorized that the true culprit was iron.
Young men begin to accumulate higher amounts of stored iron in their blood once they have stopped growing, usually around the age of 18. But young women don't experience a similar rise, because they regularly shed iron-rich red blood cells as part of their monthly menstrual cycles.
Laura Sullivan was working as a pathology resident at a veterans' hospital in Tampa when Jerome Sullivan called her from across town at St. Joseph's Hospital. "I think I've got it!" he said into the phone. "It's the iron accumulation over time." Sullivan published his seminal work, "Iron and the Sex Difference in Heart Disease," in the June 13, 1981, issue of the medical journal The Lancet. The work is still cited by other scientists to this day.
He would continue to research iron and heart disease for the rest of his career, publishing more findings and frequently lecturing at universities. He stopped practicing clinical medicine in 1997 to devote himself full-time to research. Among his many other hypotheses: Men and post-menopausal women could reduce their risk of heart attacks by donating blood.
Sullivan was born in southern Alabama, a descendant of one of the founding families of Dothan, a small city known for harvesting peanuts. He earned his medical degree from the University of Florida and his Ph.D. from Florida State University, and spent much of his career in Charleston, S.C.
The family settled in Winter Park in 1997, as Sullivan scaled back his work and Laura Sullivan, a senior pathologist with the Florida Hospital system, ramped up hers. He later joined the faculty of the University of Central Florida's new medical school, where he had planned to lecture. Sullivan enjoyed classical music and films and spent hours practicing photography, his amateur passion. But he rarely put his research aside for long.
"He was just thinking all the time. He would look like he was daydreaming, but he was thinking," his wife said. "His major professor at FSU told him to work on important things. And he took that to heart."
In addition to his wife, Sullivan is survived by five children: Best Kimbrell Sullivan of Orlando; Jerome Lee Sullivan IV of Tallahassee; Kathryn Henley Sullivan of Winter Park; William Sheffield Sullivan of Orlando; and Lisa Sullivan Ode of Cumming, Ga. He is also survived by two grandchildren, a brother and a sister.
International BioIron Society(IBIS)
For more information: www.bioiron.org
Josephine Bogie Thomas (left) & her daughter, Sandra Thomas, on the
balcony of their apartment in North Hills, Pittsburgh, Pennsylvania
in November 1998, six months before Josephine died from hereditary hemochromatosis on May 13th, 1999.
AHS Remembers 7 Years Later...August 27, 2007 to August 27, 2014
Board member and major benefactor of the
American Hemochromatosis Society
October 5, 1914 to August
Dad, you are missed every day. You did so much to help the cause for awareness of
hereditary hemochromatosis, the disease which took your dear wife, Josephine, from you. You cared for her tenderly, and stood by her without exception, tirelessly,
patiently, you were there for her from diagnosis in 1983 to her death in 1999. You set
a wonderful example of devotion and dedication. One which I easily and gladly followed when it was your turn to face the final chapter of your life. You and mom were the best, and are dearly missed. Thank you for all of the timeless life lessons you taught me.
(Joe was the father of AHS president
and founder, Sandra Thomas and husband of 59 years to
Josephine Bogie Thomas, inspiration for the founding of this organization)
Joseph Burghard Thomas Obituary
See In Memoriam tribute in Orlando Sentinel on August 27, 2013
Sandra Thomas and her father, Joe B. Thomas
Books on Hemochromatosis....
Guide to Hemochromatosis
Guide to Hemochromatosis, which is chock full of important information about hemochromatosis, can be ordered through www.amazon.com
or any major book store, or go to: www.irondisorders.org
Guidebook on Hereditary Hemochromatosis
Medifocus has published an excellent rescource and information
guide for patients and families concerning Hereditary
the AHS Neonatal Hemochromatosis Information Center (NH) Site
(left) has Neonatal Hemochromatosis (NH).
AHS sponsors a web site for this rare newborn
iron disease. Learn more about NH in newborns
and the exciting new treatment which offers new
hope for pregnant women who have already had an
NH baby in the past.
have an NH baby, please email or call us at 407-829-4488
so you aren't going through this experience alone.
There are others who have been through this same
experience and doctors who are eager to help in
any way they can. Please note: If you have hereditary hemochromatosis and are pregnant, you will not have an NH baby. If you have hereditary hemochromatosis and plan to have children, you will not have an NH baby because of that diagnosis. NH is a separate condition which is not genetic like hereditary hemochromatosis (HH).
You can also find us on Facebook.
our web site for Neonatal Hemochromatosis (NH) at: