A newly formed online support group is now available for those who may be interested. We would love to have you join us in our Families HHelping Families circle! The FHHF is an online support group, created & supported by the American Hemochromatosis Society, [AHS] where the motto is "AHS....where we treat you like a family member."

We hope for this to be an opportunity for people, with a common interest in Hereditary Hemochromatosis, a condition of iron overload, to come together via the web, to share information & support, & to become better educated on this topic.

We would like to provide an environment for you to learn more about HH through the experiences of others, as well as through sharing medical information & scientific news.
We invite you to become an active part of our "family circle!" By sharing your own experiences with HH, you will help others to gain valuable insight into living with this condition.

Together, we can educate ourselves, our families & our communities about hereditary hemochromatosis & make a difference!

FHHF is available to members of the American Hemochromatosis Society and non members alike. However, if you are not a member, but would like to be, please become a member of AHS at: donations.html to find out how you can join today!

Membership is $25 payable to AHS.

Click here to Subscribe to FHHF

Click here to read the FHHF guidelines

Special Interest Groups for HH Patients--Online Support from Other HH Patients!

AHS offers several special interest groups to iron overload, hemochromatosis patients. You are welcome to join these groups by simply emailing your request to Sandra Thomas at: mail@americanhs.org

"Seniors HH Seniors" Screening & Awareness Project (members are Seniors 55 years and older who have hemochromatosis/iron overload. Founded by Josephine Thomas, an HH activist, who is 76 years old and was diagnosed with HH in 1983 at the age of 62.)

RN's & HH group (members are RN's who have HH or are interested in the topic of HH. Tactics for disseminating information to the nursing community and doctors are discussed.)

"Children HH Children" Screening & Awareness Project and support group (members are children under the age of 18 years who have HH and their parents who are heterozygous & homozygous for HH and doctors who are interested in children with HH. Sandra Thomas founded this group and is urging all pediatricans to screen for HH.)

Physicians with HH (members are MD's/researchers who have HH themselves or are carriers of the HH gene or have a family member with HH)

Secondary Hemochromatosis/Desferal Group (members have iron loading anemias, or are transfusion dependent/transfusional iron overload, and/or use desferal for iron overload)

HH Bereavement Group (members have lost a loved one, family member, friend, to HH. The death does not have to be recent, many members lost family members over ten years ago but remember the pain and confusion of the loss)

HH Patients with Transplants Group (members have undergone a heart and/or liver transplant due to HH and is coordinated by Marianne D'Angelo whose son, Sean, underwent a heart/liver transplant due to HH.)

Athletes with HH Group (members are professional athletes with HH, or non-professional athletes who compete on a professional level who have HH, includes such sports as tennis, soccer, football, marathon races, etc.)

Christians for HH Awareness (members are Christians of all denominations who have HH or have an interest in it who wish to share with one another how their faith has helped them deal with the disease. They also share ways to spread the word on HH in their own churches and communities. They also offer bereavement counseling for those who have lost a loved one to HH.)

You are welcome to join these groups by emailing Sandra Thomas DIRECTLY at mail@americanhs.org If you have an idea for a new group with a new special interest, please submit your idea for consideration.