very special day in the history of the American Hemochromatosis
March 31, 1998 to March 31, 2015 by Sandra Thomas
the public for 17 years....
is hemochromatosis in a nutshell?
Hemochromatosis is a genetic condition which causes the
body to absorb too much iron from a normal diet.
In other words, iron overload, the opposite of iron deficiency
anemia. Another name for hemochromatosis is "iron
overload disease" or "iron storage disease".
The medical name is "HFE-associated Hereditary Hemochromatosis".
The iron accumulates in vital body organs such as the
liver, heart, pancreas and joints until it reaches a toxic
level and eventually kills the patient. Hemochromatosis
is easy to treat with bloodletting, identical to blood
donation, giving the patient the opportunity to have a
normal life span if the condition in diagnosed early.
Because it is genetic, all family members should be genetically
tested for HFE-associated Hereditary Hemochromatosis.
Now, you know what hemochromatosis is. Spread the
word, get tested, and get more details on our website!
to the Sandra Thomas Interview!!
Sandra Thomas, President/Founder, American Hemochromatosis
Blog Talk Radio on WRNW1 "Women's Radio Network"
on the Lisa Singer Show
who was interviewed on Monday, November
WRNW1 is committed to empower female professionals as
navigate through the pathways to
questions? We've got answers!
you read anything else on this website...
Here's Bottom Line Information to save you time and money:
Want answers now? Tired of wondering if you or a loved one has hereditary hemochromatosis?
answers to iron storage levels and genetic status quickly
and privately through
do it yourself "direct access" companies:
genetic testing/Home test kit/Painless:
Gene Track (www.hemochromatosisdna.com) DNA Test Kit:
$195.00 + 20% discount=$156.00. No blood or needles
free number: 1-877-714-6356 (Request discounted
price of $156.00) Painless cheek brush kit
are sent by snail mail/email in 3 to 5 days/Tests for
three HH mutations
Iron storage levels (serum iron, TIBC, & serum ferritin):
(Used for diagnosis of hemochromatosis or monitoring the diagnosed patient)
HealthCheckUSA (www.healthcheckusa.com) Toll free number: 1-800-929-2044.
doctor's order needed--you use a local lab /needle draw
HealthcheckUSA to get name and address of your local lab
to be used
note that HealthCheckUSA no longer offers the HFE mutation
genetic DNA test kit
recommend Gene Track (www.hemochromatosisDNA.com) for
see their information above.
you are searching for a diagnosis (or to rule out hemochromatosis),
or monitoring your iron levels, these tests will help
you get the answers you need. AHS would be pleased
to discuss your results with you and help you know what
questions to ask your doctor.
(AHS does not receive any funding from these companies for referring patients to them).
Please note that these labs are not a substitute for professional medical care but can provide a quick, confidential, and accurate assessment of your iron storage levels and
DNA genetic status which you can share with your doctor
if you wish.
If you have any questions about these labs please call AHS at: 407-829-4488.
all started 17 years ago...
Josephine Bogie Thomas
She was the inspiration for founding the
American Hemochromatosis Society
Sandra Thomas, Founder/President
17th Anniversary of Service to the Public!!
31, 1998 to March 31, 2015
(See the President's Message at the bottom
of the page for a history of AHS)
you for putting your trust in the American
Hemochromatosis Society (AHS)
us (and "Like" us) on Facebook!
the 1,800+ visitors who "liked" our page on
AHS New Address!!:
(In the "old
days" (circa 1998), the American Hemochromatosis Society
sent out a lot of mail. Now,
with the Internet and Facebook, we get few requests
for information by mail, and we rarely use the U.S.
postal service. Nevertheless, we do
have an address, and that address has now been changed
Hemochromatosis Society (AHS)
P.O. Box 950871
Lake Mary, Florida 32795-0871 U.S.A.
Most communcation with our society is through email,
(firstname.lastname@example.org), or facebook (www.facebook.com/HereditaryHemochromatosis),
or telephone, 407-829-4488.
We're here to help in any way we can.
to Annie's Mailbox for publishing Sandra Thomas' letter
hemochromatosis on Sunday, November 2nd, 2014!
have received calls from all over the USA!!
a trip down memory lane... Old AHS Archives!!
In Loving Memory...
The American Hemochromatosis Society extends its sincere sympathy
the family, friends, and co-workers of
July 10, 2015
Jr. Charles J. "Chuck" 64 of Egg Harbor Township,
NJ passed away peacefully at home surrounded by his family
on July 10, 2015
Born August 31, 1950 in Atlantic City, NJ, Chuck graduated
Atlantic City High in 1969. He started his law enforcement
career as a Stockton University Police Officer. A graduate
of Sea Girt Police Academy, he then joined the Atlantic
City Police Department.
After 15 years he was promoted to Sergeant and retired
after his 25 years served. Then he joined the Wackenhut
Security Dept. at the FAA in Pomona, NJ and was promoted
to Supervisor where he also became Union President. Chuck
was on the planning board for EHT. He loved the Phillies
and Eagles through their good seasons and not so good
ones. He enjoyed coaching for his children's softball
and baseball teams. He was a Catholic alter boy as a young
He is survived by his loving wife of 31 years, Janice
(Ciolorito) Turner, his children; Amy (Steve) Massaro,
Lorie (John) Walsh, Ashley Turner and Chuck Turner, III.
He was a beloved "Pop-Pop to his five grandchildren;
Kierstin, Julianna, Justin, Johnny and Kourtney. He is
also survived by his mother-in-law, Joyce Ciolorito and
his sister, Diane (James) Smith.
Chuck was the ROCK to his family, the most selfless, compassionate,
patient, devoted family man that could have ever blessed
their lives.Through this trying time, we will find comfort
just knowing he will be our angel looking down on us for
the rest of our lives.
A Gathering with the family and friends will be held on
Thursday, July 16, 2015 from 10am until 12pm at Adams-Perfect
Funeral Home 1650 New Rd. Northfield. A Funeral Service
will follow at 12pm. Burial will be held at Holy Cross
Cemetery, Mays Landing. In lieu of flowers donations may
be made to the American Hemochromatosis Society P.O. Box
950871, Lake Mary, FL 32795-0871.
Arrangements entrusted to and condolences may be left
for the family at adams-perfect.com.
June 9, 2015
H. Edward "Ed" Strong,
56, New Vienna, passed away on Tuesday, June 9, 2015 at
the Ohio State Medical Center.
He was the owner-manager of Tree Removal Service and an
aircraft mechanic with Airborne.
He is survived by his wife, Robin Tilton Strong, and children,
Amanda (Craig) Shutts, Thomas (Christina) George, Jennifer
(Matt) Terrell, Dustan, Dantan and Brendan Strong and
Laura George; grandchildren, Dylan, Kyleigh, Leland, Jacob,
Allyson, Riley, Elliot, Sophie, Shelby and Mila.
There was a celebration of Ed's life on Monday at 2 p.m.
at the Littleton Funeral Home, Sabina with Bob Baker officiating.
Friends may call from 1pm until time of service. Memorial
contributions may be made in Ed's memory to the American
Hemochromatosis Society, PO Box 950871, Lake Mary, FL
June 9, 1953 - May 20, 2015
61, of McCandless Twp., peacefully passed away surrounded
by loved ones on Wednesday, May 20, 2015. Beloved husband
for 39 years of Maura (Burwinkel); proud and loving father
of Michael C. (Nicki), Mini Maura, and Jack Counahan;
caring brother of Kathy Thomas (Kevin) and Tammy Hunter
(Keith); loving uncle of James Paul, Kelsey, and MacKenzie;
also survived by many loving friends and relatives. Friends
received Thursday 6-8 p.m. and Friday 2-4 and 6-8 p.m.
at DEVLIN FUNERAL HOME, INC., 806 Perry Hwy., Ross Twp.
A Mass of Christian Burial will be held in St. Teresa
of Avila Church on Saturday at 12:30 p.m. Paul enjoyed
a 37 year career in the heavy equipment industry, working
for Caterpillar, Inc., Beckwith Machinery, and Cleveland
Brothers. The family would like to thank the staff at
UPMC Shadyside for their support and care. In lieu of
flowers, memorial contributions may be made to the American
Hemochromatosis Society, P.O. Box 950871, Lake Mary, FL
8, 1925--March 30, 2015
Bloetscher, Douglas Keith, age 89 of Lake
Columbia (formerly of Farmington Hills) passed away March
30, 2015 at home under the loving care of his family.
He was born in Detroit on October 8, 1925 to Frederick
and Rosa (Flaishans) Bloetscher. He served his country
proudly in the U.S. Air Force during WWII. He was a graduate
of Cass Tech High School and Lawrence Technological University(1949)
where he received his degree in Architecture. In his youth,
Douglas was an avid baseball player and later in life
took up painting. On August 27, 1948 Douglas married Shirley
Thomas and she survives.
In addition to his wife of 66 years, Douglas
is survived by his children: Douglas (Ann) Bloetscher
and Susan (Chris) Wozniak; Grandchildren: Sarah, Christopher,
Stephen, Alyssa, Kristen and Lauren: Great Granddaughter:
Adrianna. He was preceded in death by his brother Frederick,
and his sisters Marge and Rosemary.
H. Trudel, 69, of Eliot, ME, formerly of Ipswich and Scottsdale,
AZ, died December 29, 2014 at Portsmouth Regional Hospital
in New Hampshire. Born in Ipswich on May 16, 1945, son
of John and Ellen (Nugent) Trudel of Meetinghouse Green,
Ipswich, he graduated from Ipswich High School, class
of 1963. Since high school, he has worked and traveled
throughout the United States while being employed in the
nuclear power and transportation service industries. He
is survived by his son, John O. Trudel and his wife Amy
and their daughter Scarlett of La Porte, TX; seven siblings,
brothers John Trudel of Byfield and Thomas Trudel of Rowley;
sisters Mary Young of Merrimac, Sheila Comeau of Newburyport;
Theresa Matregrano of Rumney, NH; Ellen Tobiasz of Eliot,
ME; and Christine Trudel of Scottsdale, AZ, and nineteen
nieces and nephews. His funeral service will be held at
10 am Saturday in the Whittier-Porter Funeral Home, 6
High St., Ipswich followed by interment in the Highland
Cemetery, Ipswich. Family and friends are respectfully
welcomed. Visiting hours will be Friday 4 to 8 pm. In
lieu of flowers memorial contributions in his name may
be made to American Hemochromatosis Society ( http://americanhs.org
of Lake Mary, Florida. For directions or to leave a condolence
please visit www.whittier-porter.com
See more at: http://www.legacy.com/obituaries/wickedlocal-ipswich/obituary.aspx?pid=173672161#sthash.TYfPyzuB.dpuf
B. "Brian" Gillespie
Gillespie --- Bernard B. “Brian” of West Roxbury,
Suddenly October 21, 2014. Age 62. Beloved son of the
late Bernard “Barney” and Cecilia F. “Sheila”
(Kearney) Gillespie. Loving brother of Mary Ellen McPhee
and her husband Joseph of Northborough, Philip and his
wife Maura of Dedham,Cecelia “Fran” Saroglou
and her husband George of Medfield, Patrick and his wife
Ellen of West Roxbury and the late John Michael Gillespie.
Devoted uncle of Bernie and Lori Saroglou, Sheila and
Jason Blydenburgh, Bridget Gillespie, Meghan Gillespie,
Michaela Gillespie and Emma Gillespie. Great Uncle of
Tyler, Camryn and Elizabeth.
Funeral from the Robert J. Lawler and Crosby Funeral Home
1803 Centre St., West Roxbury, on Monday, Oct. 27, at
10:00 am. A Mass of Christian Burial will be celebrated
in St. Theresa of Avila Church at 11:30am. Relatives and
friends are invited to attend. Interment St. Joseph Cemetery.
Member of Local 275 Carpenters Union.
In lieu of flowers donations may be made in Brian’s
name to www.americanhs.org American Hemochromatosis Society
“AHS”, PO Box 950871, Lake Mary, FL 32795-0871.
the full obituaries in the Memorial Photo Gallery)
International BioIron Society(IBIS)
For more information: www.bioiron.org
Josephine Bogie Thomas (left) & her daughter, Sandra Thomas, on the
balcony of their apartment in North Hills, Pittsburgh, Pennsylvania
in November 1998, six months before Josephine died from hereditary hemochromatosis on May 13th, 1999.
Remembers 8 Years Later...August 27, 2007 to August 27,
Board member and major benefactor of the
American Hemochromatosis Society
October 5, 1914 to August
Dad, you are missed every day. You did so much to help the cause for awareness of
hereditary hemochromatosis, the disease which took your dear wife, Josephine, from you. You cared for her tenderly, and stood by her without exception, tirelessly,
patiently, you were there for her from diagnosis in 1983 to her death in 1999. You set
a wonderful example of devotion and dedication. One which I easily and gladly followed when it was your turn to face the final chapter of your life. You and mom were the best, and are dearly missed. Thank you for all of the timeless life lessons you taught me.
(Joe was the father of AHS president
and founder, Sandra Thomas and husband of 59 years to
Josephine Bogie Thomas, inspiration for the founding of this organization)
Joseph Burghard Thomas Obituary
See In Memoriam tribute in Orlando Sentinel on August 27, 2013
Sandra Thomas and her father, Joe B. Thomas
Books on Hemochromatosis....
Guide to Hemochromatosis
Guide to Hemochromatosis, which is chock full of important information about hemochromatosis, can be ordered through www.amazon.com
or any major book store, or go to: www.irondisorders.org
Guidebook on Hereditary Hemochromatosis
Medifocus has published an excellent rescource and information
guide for patients and families concerning Hereditary
the AHS Neonatal Hemochromatosis Information Center (NH) Site
(left) has Neonatal Hemochromatosis (NH).
AHS sponsors a web site for this rare newborn
iron disease. Learn more about NH in newborns
and the exciting new treatment which offers new
hope for pregnant women who have already had an
NH baby in the past.
have an NH baby, please email or call us at 407-829-4488
so you aren't going through this experience alone.
There are others who have been through this same
experience and doctors who are eager to help in
any way they can. Please note: If you have hereditary hemochromatosis and are pregnant, you will not have an NH baby. If you have hereditary hemochromatosis and plan to have children, you will not have an NH baby because of that diagnosis. NH is a separate condition which is not genetic like hereditary hemochromatosis (HH).
You can also find us on Facebook.
our web site for Neonatal Hemochromatosis (NH) at: