American Hemochromatosis Society-Prevention Through Genetic Testing

The American Hemochromatosis Society welcomes inquiries from the media, whether television, radio, or newspapers/magazines.  AHS believes that the media is key to “getting the word out” about hereditary hemochromatosis (HH).  There is always increased awareness after a story is done on hemochromatosis.  Well known TV shows, such as “House” have featured hemochromatosis in their storyline. 

If you are with the media and considering a story on hereditary hemochromatosis (iron overload disease), we have the resources to help you write or produce a great story, a story, which no doubt, will save lives.  We have hemochromatosis patients who are willing to speak to the media, as well as have their photos used for the story.  We also have leading medical experts who are willing to speak with the media as well.

What is hemochromatosis in a nutshell? 

Hemochromatosis is a genetic condition which causes the body to absorb too much iron from a normal diet.  In other words, iron overload, the opposite of iron deficiency anemia.  Another name for hemochromatosis is “iron overload disease” or “iron storage disease”. The medical name is “HFE-associated Hereditary Hemochromatosis”. The iron accumulates in vital body organs such as the liver, heart, pancreas and joints until it reaches a toxic level and eventually kills the patient.  Hemochromatosis is easy to treat with bloodletting, identical to blood donation, giving the patient the opportunity to have a normal life span if the condition in diagnosed early.  Because it is genetic, all family members should be genetically tested for HFE-associated Hereditary Hemochromatosis.  Now, you know what hemochromatosis is.  Spread the word, get tested, and get more details on our website!

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